National Content Development Updates for the April 2026 meeting

Hi all,

One of the topics for the April CMAG meeting will be National Content Development updates. Please add your country’s update as a reply to this discussion topic in preparation for the meeting.

Thank you!

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In the Danish NRC we have primarily been working on content within elderly care, home care, and home nursing care for our municipalities.

The contents span from very national concepts related to Denmark’s way of organizing and administrating health care to concepts with a more international scope, e.g. disability related findings. The concepts we find relevant will be requested for promotion to the international edition.

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In Sweden the NRC has had a focus on content in the areas of microbiology and radiology. Both areas have been escalated to the international level and will continue to progress there with our continued involvement. Currently we are also developing national content to represent Healthcare services in Sweden. These concepts will not be promoted to the international edition because they are probably only relevant for Sweden.

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The Australian NRC has the following major items on our work program:

  • National Catalogues to support eRequesting (pathology and radiology). The pathology catalogue is near complete, though requires an editorial review for term consistency. The radiology catalogue is partially complete, pending feedback from implementers and resolution of a dependency on lateralised content currently held in other country extensions.
  • Heavy Menstrual Bleeding (HMB) content project. We are collaborating with FIGO-affiliated specialists to address content gaps and nomenclature issues associated with HMB.
  • National Health Service Directory support. We have created and promoted a range of supporting content, though challenges remain in organising core content in line with user expectations.
  • Non-medicinal allergic agent recording. We are adding content to support the recording of food and environmental allergens for a statewide single digital patient health record, improving interoperability with downstream systems that consume allergy information.
  • Bariatric surgery collaboration. We are working with bariatric surgery specialists to address core content gaps and issues in this clinical area.
  • National FHIR Implementation Guide (IG) content gaps. We are responding to content gaps identified through adoption of national FHIR IGs, including Patient Summary and Encounter, covering topics such as substance misuse and other emerging clinical areas.
  • Medicinal Cannabis content development. We are undertaking major content development within the Australian Medicines Terminology to support the recording and management of medicinal cannabis products.
  • Allied health content. A gap analysis workshop held late last year with broad clinical representation from the allied health community revealed a significant corpus of content issues, numbering in the thousands. We held a dedicated developer boot camp in March targeting allied health software vendors to support adoption of SNOMED CT.
  • Surgical procedure content for statewide surgical systems. We are managing an steady stream of content requests to support surgical procedure recording for a statewide surgical information system.
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Imaging procedures
The UK has completed it’s lateralisation of clinical imaging procedures to support our continued developments in this area. This is the first step in reviewing all the imaging procedures used in the UK. This is partly to ensure alignment between SNOMED CT and the UK’s National Interim Clinical Imaging Procedures (NICIP).

UK Drug extension
Whilst not yet complete the UK is nearing the end of a long process to completely redesign how the UK’s drug content (from the NHS dictionary of medicines and devices (dm+d)). This will bring the UK’s drug content much closer in design to the International drug model.

Pathology
Ongoing work on the UK’s pathology content. Adding both new content, mainly observables, as well as quality improvements to existing concepts.

Cannabis
Despite much internal discussion the UK has not yet decided on a path for how, or if, medicinal cannabis containing products will be added to the UK drug extension.

Genomics
Work continues on the technical and data model for the UK’s genomic record. So far only a small number of pharmacogenomic related concepts have been added in the UK.

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Hi everyone,

A reminder to add your national content development updates as a comment on this topic prior to the Vienna meeting next week (15th April).

Thanks!

The Canadian NRC continues to support developing content, and translations for the following health system programs/digital health solutions. We assess content scope and submit to SI for inclusion in core where we consider concepts are of international value.

  1. National Vaccine Catalogue
  • Medicinal products

  • Substances

  1. Canadian Medicines Terminology (CMT)
  • Substances

  • Medicinal product form

  • Medicinal product (MP only)

  • Clinical drug

  1. Provincial Occupational Health and Safety Program
  • Lateralized disorders – about 100 in queue for promotion in next SLA period
  1. Provincial and National Laboratory Information Systems
  • Organisms

  • Clinical Findings

  1. Provincial Health Service Directory
  • Medical Specialty

  • Occupation

  1. Provincial and National eReferral /eConsult Programs
  • Healthcare services

  • Procedures

  • Medical Specialty

  1. National Infectious Diseases Management Information Systems
  • Organisms
  1. Pan-Canadian Health Data Content Framework/ Canadian Core Data for Interoperability (CACDI)
  • Concepts, descriptions, translation and value set/refset development work in progress for the data content standard including domains:

  • Social History

  • Medical Imaging

  • Service Request

  • Laboratory - specimen

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The US NRC is involved in the following work:

  • Gravity project - Social Determinants of health
    We continue to work through social determinants of health domains and create new content to support the Gravity Project. The content remains divided between the International edition and the US extension.

  • Specimen cross mapping project
    The project includes representatives from American Public Health Laboratories (APHL), LabCorp, the Centers for Disease Control and Prevention (CDC), and the National Library of Medicine (NLM). The focus of the project is to create a cross-mapping table with the appropriate LOINC and SNOMED CT concepts to populate the different OBX SPM segments for HL7 V2 messaging.

  • US Extension Quality Improvement work
    The focus has been on reviewing and remodeling primitive concepts to determine whether they can be remodeled or made sufficiently defined. On average, 30% of the reviewed content is eligible for remodeling with additional defining attributes, which, in most cases, has allowed the concepts to be made sufficiently defined.

  • National Committee for Quality Assurance (NCQA) Person-centered outcome goal domain category concept creation
    We are actively working with NCQA to create concepts that represent person-centered outcome goal domains to populate the HL7 goal.category for goal-directed health care. The concepts represent categories of goals the patient would like to achieve (e.g., Physical function goal domain). Concepts are being authored in the qualifier value hierarchy.

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National developments of the Netherlands

  • refset development (mostly disorders and procedures) - we expect content questions in the areas nursing, physical therapy (ICF), occupational therapy, optometry, dietetics, primary care, mental healthcare (DSM).

  • Remodelling of spinal cord injuries with palsy/paralysis

  • LOINC translations that will also end up in our extension. We are for this dependent on the development of the LOINC Ontology.

  • Change of policy: we are planning to request more concepts instead of creating in our extension. This because we have a bulk of more than 1000 diagnosis and procedures as candidate to promote to core and it’s better to have concepts internationally available because of the EHDS.

Ongoing:

  • Hospital diagnosis and procedures

  • Pathology structured reporting - request to promote about 300 concepts (mostly observable entities) - find a way to do bulk promotion

  • Patient friendly descriptions, now about 15000 in SNOMED NL edition

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The New Zealand National Release Centre (NRC) continues to develop new SNOMED CT content to support national requirements.

Recent content development activities have included:

  • ACC injury claims support
    Developed a reference set to support automated processing of SNOMED coded injury claims for the Accident Compensation Corporation (ACC). This provides a clear and current set of diagnosis codes for use in ACC claims.

  • Emergency care reference sets
    Created reference sets to support the consistent recording of patient presenting complaints and diagnoses in urgent care and emergency department settings.

  • Healthcare service types
    Worked with a commercial provider of a national health service directory to develop SNOMED CT reference sets for healthcare service types. Language reference sets allow the use of patient friendly terms in both New Zealand English andte reo Māorifor this content and help patients and clinicians find appropriate services.

  • Sport related injury concepts
    Developed new SNOMED CT concepts to better record injuries occurring during sporting activities.

  • Ophthalmology concepts
    Collaborated with the ophthalmology community to develop concepts related to eye disorders and eye care. Some concepts were contributed to the SNOMED International Edition, while others were added to the New Zealand extension. These are now used in clinical systems across public and private care.

  • Hospital in the Home
    Developed a new reference set to support consistent coding of acute conditions for patients receiving hospital level care at home as an alternative to inpatient admission.

  • Read to SNOMED mapping
    Continued to support primary care migration from Read codes to SNOMED CT by maintaining a Read to SNOMED mapping table. This supports progress toward the national target of full SNOMED adoption in primary care.

  • Cancer care (CanShare programme)
    Supported ongoing SNOMED CT development by the CanShare programme at Cancer Control Agency | Te Aho o Te Kahu, improving standardised data for cancer treatment, screening programmes, and national cancer registers.

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The Irish NRC continues to work with many projects including

Recent Content development

ALS and Motor Neuron, developing a reference set for a EU project

Euroheart, also an EU project.

Infectious Disease system.

Organisms

Mental Health State Exam
For the Children’s Hospital

Emergency Care dataset mapping to ICD-10 AM

Shared Care Record, planning work on mapping from local codes to SNOMED

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The Norwegian NRC is working on smaller scale development in initiatives like:

  • National nursing care plans
  • Cancer registries
  • Our national drug extension
  • Adjustments of the ICD-10 map to national needs
  • Ongoing translation of concepts in the nutritional space, focusing on the international NCPT reference set
  • Harmonizing translation of ICD-11 based on previous translation of SNOMED CT
  • Participating in the MBH CRG quality initiative, specifically the pilot regarding Bipolar disorders